Monday, January 29, 2018

The Light At The End Of The Trial: 20 Months Of Cancer Treatment Ends This Week!



Throughout my treatments I have posted on this blog so I can quickly disseminate news and spare myself from having to re-live new news over and over. Well, this time I’ve waited to post on the blog because I’ve received so much joy in telling so many people in person about the next steps in our journey!

Quick recap: I’ve been on a clinical trial of immunotherapy (pembrolizumab) and targeted cancer treatment (axitinib) since May 2016, that’s about 19 months. 9 months into my treatment, about 98% of my diffusely metastatic cancer had melted away! Since then, my scans have plateaued, showing only scar tissue remaining from some of the brain and lung masses, and still slowly shrinking. This is as close to gone as we can expect it will ever be!!

At this point I like to think of it as a chronic illness- Chronic Cancer. Right now, my Chronic Cancer is controlled. In the future if there is regrowth, it will not be that my cancer is back and I have to take chemotherapy. Rather, if my Chronic Cancer flares up, I can go on the meds that control it- just like any other chronic illness. I don’t think I will ever say that I am cancer-free, because on a cellular level that’s just not true. But I know that my immune system now knows how to detect cancer cells in a way that it could not do on its own, and I rest in the hope that my body can now do the job it had forgotten how to do.

For the last 8 months we’ve seen no cancer growth and slowly shrinking scar tissue (good!). About a month ago, 17 months into treatment, I started developing an inflammatory arthritis affecting my knees, ankles, hips, shoulders, wrists, and fingers. Most likely, the immunotherapy has accomplished its goal of helping eradicate cancer (good!) and now is causing some autoimmune arthritis in my poor little joints (bad). AND what that means is that I get to come off of my trial medications 3 months early!!!(AMAZING!)!!!!

So TODAY we are leaving for a couple of celebration days in DISNEY WORLD then heading to Miami for my end-of-trial appointment!!

There’s such a mixed pot of emotions that I’m drawing from right now.
  • I am so excited that the experimental drugs that God led us to have worked against my rare and impossible to treat cancer!
  • I am so thankful to see how God has taken care of us and written this beautiful redemption story with our lives!
  • I am hurting in my joints and walking around like the bug from Men In Black when I am at my worst, and hobbling slowly when I am at my best.
  • I am thrilled to be able to be a part of the data for these amazing drugs. There isn’t evidence for when to come off of pembro for sarcoma patients, so hopefully my case can contribute to that body of knowledge.
  • I am pumped out of my brains to get to take my amazing husband and 4.5 year old sweetie to Disney World!! This has been hard. So hard. We made it through in God’s care with his strength, his daily provision, his children so readily helping us along the way. And he’s given us such hope! But it’s still been hard. And when you do something hard, you CELEBRATE when it’s done!

I’m honored that so many of you care about my family, care about my story. My cancer isn’t gone, but it’s controlled and chronic and manageable. I’ve had 4 tumor removals in the 26 year span I’ve known ASPS, 4 times I touted the coveted label of “No Evidence of Disease.” Cancer free. Now I sit with cancer still present, but tamed to a mere carcass of the deadly metastatic threat it once was. The surgeries were the bandaid, immunotherapy and targeted treatment has fixed the actual problem. Not cured, but managed. This is the future of cancer care and I am humbled to be a part of it.

21 comments:

  1. We are so happy to hear of your GREAT NEWS! Praying your arthritis improves quickly. Enjoy Disneyworld!

    ReplyDelete
    Replies


    1. Hello everybody,

      I don't just know the reason why some people is finding it difficult to believe that there is a cure for herpes, I have been suffering from herpes since last three years with my boyfriend but today I am happy that am cure from it with the herbal medicine of  PRIEST WISDOM  the great healer, I was browsing the internet searching for help when I came across a testimony shared by someone on how  PRIEST WISDOM   cure his herpes I was so much in need of getting his treatment but after all PRIEST WISDOM brought a smile to my face with his herbal medicine. I am so much happy today that we have someone like this great healer out there, so my people out there kindly contact this great healer on his email address: Supernaturalspell1@gmail.com  please sir keep your good work cause there are people out there who is in need of your healing medicine.once more contact him now: Supernaturalspell1@gmail.com  you can call him or whatsApp his number   +2348124644470 













      Hello everybody,

      I don't just know the reason why some people is finding it difficult to believe that there is a cure for herpes, I have been suffering from herpes since last three years with my boyfriend but today I am happy that am cure from it with the herbal medicine of  PRIEST WISDOM  the great healer, I was browsing the internet searching for help when I came across a testimony shared by someone on how  PRIEST WISDOM   cure his herpes I was so much in need of getting his treatment but after all PRIEST WISDOM brought a smile to my face with his herbal medicine. I am so much happy today that we have someone like this great healer out there, so my people out there kindly contact this great healer on his email address: Supernaturalspell1@gmail.com  please sir keep your good work cause there are people out there who is in need of your healing medicine.once more contact him now: Supernaturalspell1@gmail.com  you can call him or whatsApp his number   +2348124644470 










      Hello everybody,

      I don't just know the reason why some people is finding it difficult to believe that there is a cure for herpes, I have been suffering from herpes since last three years with my boyfriend but today I am happy that am cure from it with the herbal medicine of  PRIEST WISDOM  the great healer, I was browsing the internet searching for help when I came across a testimony shared by someone on how  PRIEST WISDOM   cure his herpes I was so much in need of getting his treatment but after all PRIEST WISDOM brought a smile to my face with his herbal medicine. I am so much happy today that we have someone like this great healer out there, so my people out there kindly contact this great healer on his email address: Supernaturalspell1@gmail.com  please sir keep your good work cause there are people out there who is in need of your healing medicine.once more contact him now: Supernaturalspell1@gmail.com  you can call him or whatsApp his number   +2348124644470 


      ........

      Delete
    2. Whats,App. him now +2348145810121 Hello Everyone , my name is Reema i am from Ohio United states, i just want everyone to know about Dr Sambo , he helped me win a lot of money few weeks ago on lottery, i have played a couple of times and i have never won , i contacted him and he gave me some lucky winning numbers , and he also instructed me on how to go about it , i played and i won $10,000,000  TEN MILLION DOLLARS , i have never seen such money all my life , but with the help of Dr Sambo , now i have that much , if you ever need help in getting money to pay for anything , do not hesitate to contact him , he will always be there to help you.contact him via his Email: divinespellhome@gmail.com 

      Delete
    3. So surprise when i found that HSV 1&2 could be cured with Dr Ohunyom herbal remedy, this disease almost destroy my face, and my mouth with sores. i took many traditional medicine here in United state, but none could work. even visited my mother village in South africa still couldn't find a cure, but i was so surprise that after contacting Dr Ohunyom. And after done discussing with him i was cured with his herbal in 2 weeks. i confirmed his good work by my test result, do not delay to contact this true healer. Dr Ohunyom is able to help you in any challenges, HIV AIDS, HEPATITIS B, COLD SORES, CANCER, DIABETES, HEART DISEASE, BRAIN TUMOR, ACUTE BRONCHITIS And so many more. For more details Call or what app: +2349060579973 or Email: drohunyom@gmail.com.and  He also have herbs medicine to cured the following diseases; eczema,urethra wart,chronic problems.Herpes, Cancer, Als,Hepatitis, Diabetes, HPV,Infections,ulcer  ETC

      Delete
    4. I want to write a little testimony about the good work of doctor ehiaguna who cured me from Hsv 1 and 2 for just 2 week with his herbal medicine, I never believe I can be normal again and have a good life like others I always regretted the day I got diagnose with the virus, I was lost of hope when my doctor told me there is no cure for it but I keep thinking and thinking about my future, if I can have kids of my own well I am so grateful for my helper who get me cured with his herbal medicine, I go online in search of anything that can help me because I can’t deal with it forever so I found this doc ehiaguna email on a blog of someone who was cured by him I quickly contact him for help and explain all my pain to him, he told me not to worry about it there is cure for real, I never believe until he send me the herbal medicine when I order for it and I have it within 4 days that is how I took the medicine for 2 week and the following week I go for test just to confirm I was 100% cured from this sickness what a miracle in my life I am so happy right now, you can also get in contact with him if you have such sickness through drehiaguna@gmail.com and also WhatsApp him +2348073908953... he can also help with this following sickness DIABETES CURE/EPILESY/HPV/CURE/LUPUS/HEPATITIS

      Delete
    5. I NEED MY EX BACK DESPERATELY CALL DR LARRY FOR URGENT AND FAST HELP: +1(424)-261-8520

      i want to tell the world about the great and mighty spell caster called Dr Larry my husband was cheating on me and no longer committed to me and our kids when i asked him what the problem was he told me he has fell out of love for me and wanted a divorce i was so heart broken i cried all day and night but he left home i was looking for something online when i saw an article how the great and powerful Dr Larry have helped so many in similar situation like mine he's email address was there so i sent him an email telling him about my problem he told me he shall return back to me within 24hrs i did everything he asked me to do the next day to my greatest surprise my husband came back home and was crying and begging for me to forgive and accept him back he can also help you

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      WhatsApp: +1(424)-261-8520
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      http://assurancesolutioncenter.website2.me/

      Delete

  2. WHAT A GREAT MIRACLE THAT I HAVE EVER SEE IN MY LIFE. My names are Robert Mary
    I’m a citizen of United Kingdom, My younger sister was Sicking of
    breast cancer and her name is Robert Jane, I and my family have taking
    her to all kind of hospital in UK still yet no good result. I decided
    to go to the internet and search for cancer cure so that was how I
    find a lady called Sarah peter she was testifies to the world about
    the goodness of a herbal man who has the root and half to cure all
    kind of disease and the herbal email was there. So I decided to
    contact the herbal man for my younger sister help to cure her breast
    cancer. I contacted him and told him my problem he told me that I
    should not worry that my sister cancer will be cure, he told me that
    there is a medicine that he is going to give me that I will cook it
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    receive the cure that I am in UK, he told me
    That I will pay for the delivery service. The courier service can
    transport it to me so he told me the amount I will pay, so my dad paid
    for the delivery fee. two days later I receive the cure from the
    courier service so I used it as the herbal man instructed me to,
    before the week complete my sister cancer was healed and it was like a
    dream to me not knowing that it was physical I and my family were very
    happy about the miracle of Doctor so my dad wanted to pay him 5
    million us dollars the herbal man did not accept the offer from my dad,but I don't know why he did not accept the offer,he only said
    I should tell the world about him and his miracle he perform so am now
    here to tell the world about him if you or your relative is having any
    kind of disease that you can't get from the hospital please contact
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    with any problems you have.To get more information you can message me via email robertmary8947@gmail.com

    ReplyDelete
  3. I am so so happy today, I have been suffering from HSV for the past 2years now, i have spent a lot on drugs which has all proved abortive, i have tried all means in life to become HSV negative, but there was no answer until i found Herbalist Okougbe an online research i contacted him and the Dr Okougbe sent me his herbal medication and the prescription on how to use it, i am now HSV Negative, i am very very happy, thanks to Dr Okougbe for helping my life come back newly again without any form of crisis, i promise to tell your name and good deeds to the whole world, Kindly contact Dr Okougbe for cure regarding, HIV, Herpes, hepatitis, Cancer and other deadly diseases. contact via: Drokougbespecialhome@gmail.com or whatsapp +234 811 927 8442.

    ReplyDelete
  4. Hello everybody,

    I don't just know the reason why some people is finding it difficult to believe that there is a cure for herpes, I have been suffering from herpes since last three years with my boyfriend but today I am happy that am cure from it with the herbal medicine of  PRIEST WISDOM  the great healer, I was browsing the internet searching for help when I came across a testimony shared by someone on how  PRIEST WISDOM   cure his herpes I was so much in need of getting his treatment but after all PRIEST WISDOM brought a smile to my face with his herbal medicine. I am so much happy today that we have someone like this great healer out there, so my people out there kindly contact this great healer on his email address: Supernaturalspell1@gmail.com  please sir keep your good work cause there are people out there who is in need of your healing medicine.once more contact him now: Supernaturalspell1@gmail.com  you can call him or whatsApp his number   +2348124644470 

    ReplyDelete
  5. Hello everybody,

    I don't just know the reason why some people is finding it difficult to believe that there is a cure for herpes, I have been suffering from herpes since last three years with my boyfriend but today I am happy that am cure from it with the herbal medicine of  PRIEST WISDOM  the great healer, I was browsing the internet searching for help when I came across a testimony shared by someone on how  PRIEST WISDOM   cure his herpes I was so much in need of getting his treatment but after all PRIEST WISDOM brought a smile to my face with his herbal medicine. I am so much happy today that we have someone like this great healer out there, so my people out there kindly contact this great healer on his email address: Supernaturalspell1@gmail.com  please sir keep your good work cause there are people out there who is in need of your healing medicine.once more contact him now: Supernaturalspell1@gmail.com  you can call him or whatsApp his number   +2348124644470 

    ReplyDelete
  6. I'm so excited my broken Marriage has been restored my ex husband is back after he left me and our 2kids for another woman. i was so happy to met Dr. OKu how he help many people to bring there Lover back so i contact him to help me too. that was how Dr. Oku help me to bring my husband back.. A big thank to you Dr. Oku because I never thought my ex Husband will be back to me so quickly with your spell. You are the best and world greatest. if you are here and you need your Ex Lover back or your husband moved to another woman, do not cry anymore, contact this powerful spell caster now. Here’s his contact:
    Email him at: okutemple@gmail.com You can also Call/WhatsApp:+2347053113465

    ReplyDelete
  7. I'm so excited my broken Marriage has been restored my ex husband is back after he left me and our 2kids for another woman. i was so happy to met Dr. OKu how he help many people to bring there Lover back so i contact him to help me too. that was how Dr. Oku help me to bring my husband back.. A big thank to you Dr. Oku because I never thought my ex Husband will be back to me so quickly with your spell. You are the best and world greatest. if you are here and you need your Ex Lover back or your husband moved to another woman, do not cry anymore, contact this powerful spell caster now. Here’s his contact:
    Email him at: okutemple@gmail.com You can also Call/WhatsApp:+2347053113465

    ReplyDelete
  8. HOW I GOT MY EX HUSBAND BACK WITH THE HELP OF REAL AND EFFECTIVE SPELL FROM DR Osasu My name is Olivia Jayden, I never thought I will smile again, My husband left me with two kids for one year, All effort to bring him back failed I thought I'm not going to see him again not until I met a lady called Jesse who told me about a spell caster called Dr. Osasu , She gave me his email address and mobile number and I contacted him and he assured me that within 48hours my husband will come back to me, In less than 48hours my husband came back started begging for forgiveness saying it is the devils work, so I'm still surprise till now about this miracle,i couldn't conceive but as soon as the spell was cast,i became pregnant and gave birth to my third child,if you need any assistance from him you can contact him via:email: drosasu25@gmail.com Or WhatsApp or call him now:
    +2347064365391 . Dr.Osasu also cures: 1. HIV / AIDS 2. HERPES 1/2 3. CANCER 4. ALS (Lou Gehrig’s disease) 5. Hepatitis B

    ReplyDelete
  9. Whats,App. him now +2348145810121 Hello Everyone , my name is Reema i am from Ohio United states, i just want everyone to know about Dr Sambo , he helped me win a lot of money few weeks ago on lottery, i have played a couple of times and i have never won , i contacted him and he gave me some lucky winning numbers , and he also instructed me on how to go about it , i played and i won $10,000,000  TEN MILLION DOLLARS , i have never seen such money all my life , but with the help of Dr Sambo , now i have that much , if you ever need help in getting money to pay for anything , do not hesitate to contact him , he will always be there to help you.contact him via his Email: divinespellhome@gmail.com 

    ReplyDelete
  10. Whats,App. him now +2348145810121 Hello Everyone , my name is Reema i am from Ohio United states, i just want everyone to know about Dr Sambo , he helped me win a lot of money few weeks ago on lottery, i have played a couple of times and i have never won , i contacted him and he gave me some lucky winning numbers , and he also instructed me on how to go about it , i played and i won $10,000,000  TEN MILLION DOLLARS , i have never seen such money all my life , but with the help of Dr Sambo , now i have that much , if you ever need help in getting money to pay for anything , do not hesitate to contact him , he will always be there to help you.contact him via his Email: divinespellhome@gmail.com 

    ReplyDelete
    Replies
    1. So surprise when i found that HSV 1&2 could be cured with Dr Ohunyom herbal remedy, this disease almost destroy my face, and my mouth with sores. i took many traditional medicine here in United state, but none could work. even visited my mother village in South africa still couldn't find a cure, but i was so surprise that after contacting Dr Ohunyom. And after done discussing with him i was cured with his herbal in 2 weeks. i confirmed his good work by my test result, do not delay to contact this true healer. Dr Ohunyom is able to help you in any challenges, HIV AIDS, HEPATITIS B, COLD SORES, CANCER, DIABETES, HEART DISEASE, BRAIN TUMOR, ACUTE BRONCHITIS And so many more. For more details Call or what app: +2349060579973 or Email: drohunyom@gmail.com.and  He also have herbs medicine to cured the following diseases; eczema,urethra wart,chronic problems.Herpes, Cancer, Als,Hepatitis, Diabetes, HPV,Infections,ulcer  ETC

      Delete
  11. Hello everyone reading this testimony. I have been rejected by my husband after three(3) years of marriage just because another woman had a spell on him and he left me and the kid to suffer. One day when I was reading through the web, I saw a post on how this spell caster Dr irosi have help a woman to get back her husband and I gave him a reply to his address and he told me that a woman had a spell on my husband and he told me that he will help me and after 3 days that I will have my husband back. I believed him and today I am glad to let you all know that this spell caster have the power to bring lovers back because I am now happy with my husband. Thanks for His great work here is his email: drirosisolutioncenter@gmail.com Or call his number +2348118829771 Contact Dr irosi and get your relationship problem solved.    

    ReplyDelete
  12. I'm so excited my broken Marriage has been restored my ex husband is back after he left me and our 2kids for another woman. i was so happy to met Dr. OKu how he help many people to bring there Lover back so i contact him to help me too. that was how Dr. Oku help me to bring my husband back.. A big thank to you Dr. Oku because I never thought my ex Husband will be back to me so quickly with your spell. You are the best and world greatest. if you are here and you need your Ex Lover back or your husband moved to another woman, do not cry anymore, contact this powerful spell caster now. Here’s his contact:
    Email him at: okutemple@gmail.com You can also Call/WhatsApp:+2347053113465

    ReplyDelete
  13. I'm so excited my broken Marriage has been restored my ex husband is back after he left me and our 2kids for another woman. i was so happy to met Dr. OKu how he help many people to bring there Lover back so i contact him to help me too. that was how Dr. Oku help me to bring my husband back.. A big thank to you Dr. Oku because I never thought my ex Husband will be back to me so quickly with your spell. You are the best and world greatest. if you are here and you need your Ex Lover back or your husband moved to another woman, do not cry anymore, contact this powerful spell caster now. Here’s his contact:
    Email him at: okutemple@gmail.com You can also Call/WhatsApp:+2347053113465

    ReplyDelete
  14. I want to write a little testimony about the good work of doctor ehiaguna who cured me from Hsv 1 and 2 for just 2 week with his herbal medicine, I never believe I can be normal again and have a good life like others I always regretted the day I got diagnose with the virus, I was lost of hope when my doctor told me there is no cure for it but I keep thinking and thinking about my future, if I can have kids of my own well I am so grateful for my helper who get me cured with his herbal medicine, I go online in search of anything that can help me because I can’t deal with it forever so I found this doc ehiaguna email on a blog of someone who was cured by him I quickly contact him for help and explain all my pain to him, he told me not to worry about it there is cure for real, I never believe until he send me the herbal medicine when I order for it and I have it within 4 days that is how I took the medicine for 2 week and the following week I go for test just to confirm I was 100% cured from this sickness what a miracle in my life I am so happy right now, you can also get in contact with him if you have such sickness through drehiaguna@gmail.com and also WhatsApp him +2348073908953... he can also help with this following sickness DIABETES CURE/EPILESY/HPV/CURE/LUPUS/HEPATITIS

    ReplyDelete
  15. Natural Treatment for Waldenstrom’s Macroglobulinemia is intended to treat symptoms and prevent complications. Herbal Supplement is a safe and effective treatment.

    ReplyDelete